To ask His Majesty's Government, in light of the National Confidential Enquiry into Patient Outcome and Death's report Learning Together, published 11 June, what immediate steps they are taking to ensure frontline NHS staff use accurate clinical terminology in electronic patient records.
Integrated care boards are responsible for assessing local need and commissioning services to best meet the needs of their local population, including determining how services are delivered locally to reduce the health inequalities. Therefore, staffing models may differ between areas to reflect local needs and existing provision. All staff within health and social care must have learning disability and autism training specific to their role as set out in the Health and Care Act 2022, which means that staff who see patients should be better able to meet the needs of people who have a learning disability.
We are committed to ensuring that, under the Reasonable Adjustment Digital Flag Information Standard 2025, all publicly funded health and social care service providers are able to share, read, and write reasonable adjustment data by 30 September 2026. The Information Standard is mandated across all publicly funded health and social care providers, commissioners, and IT suppliers. Should issues of non-compliance arise, commissioners of health and publicly funded social care services will be able to enact contractual sanctions at their discretion.
The Government continues to recognise the value of involving patients and family carers in decisions about the care of people with a learning disability. The Health and Care Act 2022 sets duties for involving carers in healthcare. Acute trusts are responsible for determining how best to involve family carers in the delivery of care, taking account of the needs of their patients and local circumstances. There are currently no plans to establish independent or statutory audits to monitor whether acute trusts are consistently involving family carers from admission to discharge. The Friends and Family Test is an important feedback tool that supports the fundamental principle that people who use National Health Services should have the opportunity to provide feedback on their experience.
NHS England has previously published guidance to support primary care to identify people with a learning disability, titled Improving identification of people with a learning disability: guidance for general practice. This information can be shared with other health providers if a patient gives their permission. The Summary Care Record is a national database that holds electronic records of important patient information such as current medication, allergies, and details of any previous bad reactions to medicines, created from general practice medical records. It can be seen and used by authorised staff involved in the patient's direct care, including in other organisations such as an acute trust, with the patient’s consent. We expect acute hospitals to have appropriate arrangements in place to record learning disability information, including through the use of SNOMED codes, which are mandated for use across the NHS including in acute trusts.
Answered on 13 Jul 2026